The EACH/PIC Coalition submitted a comment letter to the Minnesota Prescription Drug Affordability Board (PDAB) providing input for the board on patient engagement, sharing best practices and lessons learned in other states.
The letter states:
“We appreciate the Minnesota PDAB’s commitment to designing processes that reflect the lived experiences of patients and welcome the opportunity to share our observations from other states, along with data from our patient-led research. Our goal is to encourage the Minnesota PDAB to adopt a patient engagement framework that emphasizes authenticity, inclusivity, and collaboration from the very beginning of its work.”
“[D]rug price alone and even surface-level opinions on affordability are hardly enough to determine the true source of patient hardship. Instead, patient experiences are nuanced and complex, requiring thoughtful outreach and engagement to identify appropriate policy solutions. … We encourage the Minnesota PDAB to create multiple avenues for engaging with patients and capturing their input on drug affordability and access.”
“The Minnesota PDAB has the opportunity to build a national model for patient engagement by adopting a collaborative process that begins with patients and ensures their experiences remain central throughout. EACH and PIC stand ready to serve as a partner—sharing our survey data, collaborating on outreach, and helping design engagement methods that yield authentic, actionable insights.”