What Is the Patient Inclusion Council (PIC)?

The Patient Inclusion Council (PIC) is led by patients and caregivers, people like you, and works alongside patient organizations and allied groups that regularly engage with patient communities.

PIC brings patients and caregivers together to ensure real-life experiences with medication costs and access shape healthcare and prescription drug affordability policies. We do this through peer-led education, shared experiences, and advocacy opportunities.

Whether this is your first time sharing your experience or you’ve been advocating for years, there is a place for you here, including voices from communities often left out of healthcare decisions.

PIC works both on its own and as part of the broader EACH Coalition (patient organizations and allied groups) to ensure patient voices are included wherever decisions are made.

Note: “Prescription drugs” simply means medications that require a prescription from a healthcare provider.

What is the PIC’s Goal?

To ensure decisions about medication costs and access are shaped by real patient experiences, not assumptions, so policies work for the people who rely on these medications.

What the PIC Does

Peer-Led Education & Support

Patients and caregivers learn from one another through easy-to-understand, peer-created resources and educational sessions about medication access, affordability, and policy decisions.

Patient Empowerment

We help patients and caregivers:

• Sharing their experiences through surveys, written comments, or speaking at meetings
• Building confidence to tell their stories to state and federal decision-makers
• Helping policymakers understand the real-world challenges patients face when accessing medications

Get Involved

Medication costs and access impact all of us—but decisions are often made without hearing directly from patients and caregivers. PIC provides a safe, supportive space to share your real-life experiences and help shape policies that shape how people get and afford their medications.

By getting involved, you help ensure patient voices are heard, respected, and included—so decisions about medications are made with patients, not without us.

There are easy ways to get involved and make your voice heard, based on your comfort and availability.

Share Your Experience

• Take short surveys about medication costs and access
• Participate in peer-led group decisions about medication costs and access
• Share your story through social media, written comments, or speaking at meetings
• Participate in state government boards that review medication prices
• National Medicare medication reviews

Learn and Connect

• Connect with other patients and caregivers across health conditions
• Learn patient advocacy basics, including how to tell your story and speak up on issues that matter to you
• Join webinars and conversations about medication cost and access
• Learn how health policy decisions impact patients and caregivers

Looking to do more?

Patients and caregivers who want to be more involved can join PIC as members. Membership opportunities include helping guide advocacy efforts, mentoring peers, and working more closely with the coalition to shape policies on medication access and affordability.