The EACH/PIC Coalition submitted comments to the Colorado PDAB on the proposed recommendations for engaging patients in the cost review process developed through the PDAAC-led stakeholder workgroup. The letter urges for the implementation of reforms that will increase engagement and improve collaboration between board members and patient organizations.
The letter states:
“We appreciated the opportunity to participate in the workgroup sessions and shape recommendations intended to strengthen patient engagement and transparency. Ultimately, however, the success of any policy changes will depend on how they are implemented and modeled by the board itself. The board sets the tone for how patient organizations and patients are viewed, engaged, and treated throughout the PDAB process.”
“We urge the board to foster a culture of trust, respect, and consistency. Any policies related to transparency or conflicts of interest must be applied equally and universally. Patient organizations play a critical role in elevating lived experience, and effective engagement depends on the board demonstrating that those perspectives are valued and welcomed.”
“At every stage, including identifying solutions, affordability should remain centered on patients and the realities they face in accessing and affording their medications. We offer these comments based on both our workgroup participation and our broader experience engaging with PDABs nationwide, in the spirit of supporting a credible, inclusive, and patient-focused process.”