The Rare Access Action Project (RAAP) is an ad hoc coalition advocating for solutions to rare disease patient access in health care. Consisting of patient advocates, emerging life science companies, and other rare disease stakeholders, RAAP, is committed to exploring policy solutions to address structural issues in access and coverage
During the November coalition meeting, Michael Eging shared updates with participants on RAAP’s engagement with PDABs and ways they advocate for the rare disease community in front of boards across the nation.
To learn more about RAAP’s PDAB work, please check out the PDAB page and webinar series on their site.